These photos are the journey we had in between from going home totally clueless, to taking him to surgery. We took him to so many people for help- but alas not a doctor as to get a second opinion, as we trusted that what we had been told, that he would be ‘okay’ soon. We had we even had a diagnosis at this point at all.
The first physio we encountered at 3 weeks old confirmed what we at that stage of spending night after night online looking for answers and had self diagnosed that that our son had Erb’s Palsy- Brachial Paralysis. We then found the Erbs Palsy Group, and from there moved hospitals and had his first official diagnosis at 5 weeks old.
At 4 weeks old Paul went away to work, so I was literally left holding the baby, which I was prepared for, but I certainly was not prepared for hospital visits every evening- I don’t drive- so having to go in a taxi there and back, lugging the car seat in and out all the while being a brand new Mummy, and running our business too. We were not getting home until 8 or 9pm each night.
Seth also suffered from terrible colic from week 4 until week 12 so it was a long time of many sleepless nights, along with all the other normal visits for jabs and check ups, and then physio exercises at home every two hours round the clock. Looking back I don’t know how I did it, and thank God for being my anchor throughout. I could not think too far ahead as it would all overwhelm me too much, and I would feel my chest tighten, so just focused on one day at a time and getting us from morning to night.
Having our quality time together was few and far between and I would switch off and enjoy him as I had read how many other families with a baby with Erb’s Palsy missed that time, I cherished every tender moment we had in that time.
You will see the use of K Tape in many photos, we started this with the sacro cranial and after reading more about it, the physio’s started to use it too. In this whole period between birth and surgery- spanning three months we had two different physio’s, we took him to our pastor for prayer and oil anointing, sacro cranial, a chiropractor, specialist baby physio, acupuncturist, we bought a cold light level laser, and I even bought a rose quartz stone! We tried everything and exhausted every possible option to help him. Every moment in the night he would be sleeping, I would be online searching every possible bit of information, contacting families and educating myself as much as I could.
Physio excercises are the best thing that could and can be done, and so we stopped everything else as it was financially starting to take its toll, and kept focused on this, as well as the use of the laser every so often, the laser described as ‘sunshine on a garden’ made a lot of sense for us, as to help the nerves to nourish and accelerate the healing inside. Little did we know that they were severed completely, and that only be being opened up for an exploratory surgery, would we then know the extent of the damage for repair.
The physio is so important as it keeps his arm supple and stops it from stiffening, and ensures his muscles stay working, and get them strong. We all take our arm for granted, and think just how much you move your own arm doing things without thinking on a daily basis. By our moving his arm often day and night, we keep everything working so that when Seth’s nerves start to take and work, that the rest of his arm is not a heavy limp matter, but will be able to lift as it will have strength. We will need to do his physio like this daily for years to come, and as he gets older, and starts to get some movement, it must continue and he as a teen and adult will need to continue it too.
You will also see many a photo with Runkle, our Burmese cat who knew that something was wrong and would sit with him constantly, his protector and his best friend.
You will see his right arm just there, and also he has a waiters tip: The signs of Erb’s Palsy include loss of sensation in the arm and paralysis and atrophy of the deltoid, biceps, and brachialis muscles. “The position of the limb, under such conditions, is characteristic: the arm hangs by the side and is rotated medially; the forearm is extended and pronated. The arm cannot be raised from the side; all power of flexion of the elbow is lost, as is also supination of the forearm”. The resulting biceps damage is the main cause of this classic physical position commonly called “waiter’s tip.” Taken from http://en.wikipedia.org/wiki/Erb’s_palsy